Kaden's Journey: Just a little angry

Sunday, June 15, 2008

Just a little angry

About 10 weeks ago we went to the Cincinnati fetal care center in hopes of being approved for the utero fetal surgery. Our hopes were crushed when they said it is no longer done except over seas. Then I was reading posts in my support group, Breath of Hope and I kept seeing others talk of fetal surgery. I was confused and asked and then I looked it up for myself and it seems that UCSF is still doing the surgery, boy was I shocked and angered. We wanted the surgery and we were told that we would be candidates (by cincinnati) if they still did the surgery. Well they do the surgery between 26-28 weeks and now it is to late because I am 30 weeks. This surgery could have saved his life, and all I know is that Cincinnati better pray my baby boy will be ok. I know everything happens for a reason, but I think this is just a little ridiculous. Had those doctors told me about UCSF we would have gone in a heartbeat. I feel very angry and hurt right now, and I guess I just need time to cool off.

1 comment:

j87morrow said...: It seems everything happens for a reason and we were not meant to have the surgery. Whatever God's plan is I am willing to accept it. God knows what he is doing and so far I have had Kaden for 11 days.; August 29, 2008 at 4:52 PM

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All About CDH & Breath of Hope inc.

A Congenital Diaphragmatic Hernia happens when a hole in the diaphragm does not close all the way in either the right or left side of the diaphragm, 2% of the time it happens to both sides, or is called bilateral CDH. This hole in the diaphragm allows the abdominal contents, such as the stomach intestines spleen and liver, to enter the chest and severely crush and displace the heart and lungs. This makes CDH a very dangerous and often fatal birth defect.

Of all the babies affected by CDH, only 50% survive

A Congenital Diaphragmatic Hernia (C.D.H.) occurs in 1 out of every 2,000 live births.

There is no known cause of CDH

CDH occurs just as often as Downs Syndrome, Spina Bifida and Cycstic Fibrosis, but many do not know of CDH until their baby or a loved ones baby is diagnosed. Breath of Hope inc wants that to change, We are fighting for CDH Awareness!!!

You can view www.cdhawareness.com to find out more info as well as donate to help find the cause and one day end CDH. All donations are tax deductable!!!

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