Friday, September 12, 2008

Still Defying The Odds

Kaden is holding on for dear life. They were finally able to turn his head to the right (a little) and move the oscillator to the right side as well. His neck muscles are very stiff from being to left for over 3 weeks. His oxygen saturation is fluctuating between 78-86. His echo also showed that the blood is getting to both sides of his heart which means the medicine is helping his pulmonary hypertension. We are very happy to still have our little warrior. One more day, thats all we can ask for. We are taking Kaden's Journey one day at a time. Kaden will be 1 month old in 6 days!!!! I cannot believe how much time has gone by. I love every day with my little hero. Kayleigh was in the Nicu waiting area today, and she cried when we left saying "I wanna see my baby brother mommy, I wanna see him" It was so hard to hold back the tears. I pray God allows the days to come when we can all be together at home.

12 comments:

Aep said...

Jamie,
I am so glad to hear that Kaden is doing well and continues to be a strong little boy that he has proven to be!
You have amazing strength and Kaden knows that.
We will keep praying for all of you.
Hugs,
Ana and Marco

Heather and Matt said...

Thank you for the update. We were hoping to hear from you :-) Hang in there. You guys are wonderful parents and Kaden is a little hero - he is our hero too!
Constant prayers and Lung Function Chants are coming you way.

Betsy Dellinger said...

Praise God....He is showing His mighty hand through little Kaden. Please know that we are praying fervently for him here in North Carolina. Hang in there, our God is still a God of miracles....

kathy said...

Jamie,
I am so happy that Kaden is doing so well. The first thing I do is look for an update on Kaden and he is the last person I think about before I go to sleep. Kaden is my hero also! He amazes me daily. I think one day at a time is a good plan, I know it is not always easy to stay in the moment(trust me!).Stay strong there are so many people praying for your family.Please give Kaden a kiss for me, and one for his big sister!
Kathy

Elizabeth said...

Keeping Kaden in my thoughts, prayers and LUNG FUNCTION chants.

Jamie - you are in our constant thoughts...
Elizabeth

mummy to angel SKYLA said...
This comment has been removed by the author.
Brian and Cassi Reed said...

I just found your blog through another CDH baby that I follow. I know exactly what you are feeling, our Elli lost her CDH battle after 20 days. Keep your heads up. We are praying that Kaden continues to defy the odds and proves to the doctors that he is such a strong fighter. We will also be praying for strenght for you and your husband.

Angel Elli's Mom Cassi
babygirlreed2be.blogspot.com

Owain's mommy said...

James,Jamie and little warrior Kaden

I will be praying for your little warrior and your family while you get through this bumpy roller coaster ride.

Amber
mom to Owain LCDH

mummy to angel SKYLA said...

I just found your blog. Lots of prayers coming your way. Keep fighting Kaden. You can do it darlin.

Kristy, Mum to angel SKYLA LCDH
www.skylacdhbaby.blogspot.com

Dotty said...

Praying for a fellow CDH baby!! Go Kaden Go!! praying things start to look up and stay up!!
xoxoxo
Dotty
cdh momma to Zachary 10-26-07

Owain's mommy said...

I hope everything is ok. I keep checking your blog for an update. Kaden and your family are in my thoughts and prayers daily.

Amber

Terri said...

I just wanted you guys to know I'm thinking and praying for you and Kaden. What a fighter he truly is!

~Terri and Ava